{"id":22608,"date":"2022-03-02T08:01:42","date_gmt":"2022-03-02T06:01:42","guid":{"rendered":"https:\/\/www.acmah.org\/?p=22608"},"modified":"2022-03-02T09:25:15","modified_gmt":"2022-03-02T07:25:15","slug":"entrevista-xarxanet","status":"publish","type":"post","link":"https:\/\/www.acmah.org\/es\/entrevista-xarxanet\/","title":{"rendered":"Entrevista Xarxanet"},"content":{"rendered":"<p>[et_pb_section fb_built=\u00bb1&#8243; specialty=\u00bbon\u00bb _builder_version=\u00bb4.7.0&#8243; _module_preset=\u00bbdefault\u00bb inner_max_width=\u00bb90%\u00bb global_colors_info=\u00bb{}\u00bb][et_pb_column type=\u00bb1_2&#8243; _builder_version=\u00bb3.25&#8243; custom_padding=\u00bb|||\u00bb global_colors_info=\u00bb{}\u00bb custom_padding__hover=\u00bb|||\u00bb][et_pb_text _builder_version=\u00bb4.14.8&#8243; text_text_color=\u00bb#000000&#8243; text_font_size=\u00bb18px\u00bb text_line_height=\u00bb1.6em\u00bb header_2_font=\u00bb|700|||||||\u00bb header_2_text_color=\u00bb#b70d1d\u00bb header_2_line_height=\u00bb1.8em\u00bb header_3_font=\u00bb|600|||||||\u00bb header_3_text_color=\u00bb#b70d1d\u00bb header_3_font_size=\u00bb20px\u00bb header_3_line_height=\u00bb1.6em\u00bb text_orientation=\u00bbjustified\u00bb custom_margin=\u00bb||50px||false|false\u00bb custom_padding=\u00bb|||20px|false|false\u00bb border_width_left=\u00bb4px\u00bb border_color_left=\u00bb#9c8688&#8243; global_colors_info=\u00bb{}\u00bb]<strong><span>Luz Garc\u00eda: \u00abLa pandemia ha provocado un retroceso en la situaci\u00f3n de las familias con Enfermedad de Huntington\u00bb<\/span><\/strong><\/p>\n<p><span>El 19 de Febrero de 2021, con motivo de la celebraci\u00f3n del <strong>D\u00eda Mundial de las Enfermedades Minoritaries<\/strong>, <strong>XARXANET<\/strong> se puso en contacto con ACMAH e hizo una <strong>entrevista<\/strong>, a su <strong>T\u00e9cnica de Proyectos, Gesti\u00f3n y Recursos<\/strong>, para hablar sobre <strong>la Enfermedad de Huntington, la Entidad y las consecuencias de la pandemia en las personas y familias afectades<\/strong>. <\/span><\/p>\n<p><span>Os dejamos algunos p\u00e1rrafos de la misma:<\/span><\/p>\n<p><span>Hablar de la situaci\u00f3n de crisis sanitaria actual es hablar de p\u00e9rdidas, ausencias y lutos y de un a\u00f1o 2020 muy duro y dif\u00edcil para nuestras familias. La Covid-19 y sus efectos directos e indirectos estar dejando una impronta importante en las personas con discapacidad y enfermedades neuro-degenerativas y minoritarias como la nuestra.<\/span><\/p>\n<p><span>En cuanto a las personas afectadas ha comportado una bajada en el mantenimiento de sus capacidades f\u00edsicas, cognitivas y conductuales, d\u00e1ndose un avance importante en los s\u00edntomas evolutivos de la enfermedad, generado por la inactividad obligada por el confinamiento y los cambios en los horarios y las din\u00e1micas del d\u00eda a d\u00eda que, en perfiles como los nuestros, se los ha provocado un gran retroceso.<\/span><\/p>\n<p><span>Los entornos y n\u00facleos familiares y las figuras de cuidadores y cuidadoras no profesionales, han sufrido tambi\u00e9n un importante aumento de sus horas de dedicaci\u00f3n a la cura y de responsabilidades, muchas veces por problem\u00e1ticas sociales y econ\u00f3micas sobrevenidas, provocando fuertes sobrecargas que han dado a situaciones de angustia y de mucho desgaste f\u00edsico y emocional.<\/span><\/p>\n<p><span>Desde ACMAH hemos aumentado la atenci\u00f3n individual, no presencial, a fin de minimizar todos estos efectos y nuestras personas y familias han sido acompa\u00f1adas, sobre todo y con m\u00e1s intensidad, a lo largo de los momentos m\u00e1s duros de confinamiento.<\/span><\/p>\n<p><span><strong>Enlace a la entrevista entera<\/strong>:<\/span><\/p>\n<p><span style=\"color: #993300;\"><a href=\"https:\/\/xarxanet.org\/comunitari\/noticies\/luz-garcia-la-pandemia-ha-provocat-un-retroces-en-la-situacio-de-les-families\" style=\"color: #993300;\" target=\"_blank\" rel=\"noopener\">https:\/\/xarxanet.org\/comunitari\/noticies\/luz-garcia-la-pandemia-ha-provocat-un-retroces-en-la-situacio-de-les-families<\/a> <\/span>[\/et_pb_text][\/et_pb_column][et_pb_column type=\u00bb1_2&#8243; specialty_columns=\u00bb2&#8243; _builder_version=\u00bb3.25&#8243; custom_padding=\u00bb|||\u00bb global_colors_info=\u00bb{}\u00bb custom_padding__hover=\u00bb|||\u00bb][et_pb_row_inner _builder_version=\u00bb4.7.0&#8243; _module_preset=\u00bbdefault\u00bb global_colors_info=\u00bb{}\u00bb][et_pb_column_inner saved_specialty_column_type=\u00bb1_2&#8243; _builder_version=\u00bb4.7.0&#8243; _module_preset=\u00bbdefault\u00bb global_colors_info=\u00bb{}\u00bb][et_pb_image src=\u00bbhttps:\/\/www.acmah.org\/wp-content\/uploads\/2022\/02\/Foto-Noticia-19022021.jpg\u00bb title_text=\u00bbFoto Noticia 19022021&#8243; show_in_lightbox=\u00bbon\u00bb align=\u00bbcenter\u00bb _builder_version=\u00bb4.14.8&#8243; global_colors_info=\u00bb{}\u00bb][\/et_pb_image][\/et_pb_column_inner][\/et_pb_row_inner][\/et_pb_column][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Luz Garc\u00eda: \u00abLa pandemia ha provocado un retroceso en la situaci\u00f3n de las familias con Enfermedad de Huntington\u00bb El 19 de Febrero de 2021, con motivo de la celebraci\u00f3n del D\u00eda Mundial de las Enfermedades Minoritaries, XARXANET se puso en contacto con ACMAH e hizo una entrevista, a su T\u00e9cnica de Proyectos, Gesti\u00f3n y Recursos, [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":22613,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":""},"categories":[23,12],"tags":[],"dipi_cpt_category":[],"class_list":["post-22608","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-2021-es","category-es"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.2 - 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